Archive for the ‘Support’ Category

Thursday, December 29, 2011

Social Media for Cancer Patients

In recent years, the Internet has become a terrific resource for more than just information – it has become a way of connecting Vanderbilt-Ingram Cancer Center's Cynthia Manleywith others and gaining support. For cancer patients, this means an ability to reach out to other patients with similar cancers and to learn from one another and to help each other.

In this video, Cynthia Manley, from Vanderbilt-Ingram Cancer Center talks about the benefits of social media for cancer patients, their caregivers, and friends and family. Click here to watch.

Friday, November 18, 2011

3 Simple Ways To Calm Your Fear

It’s amazing how much fear can come up when our physical health is challenged. We may entertain all the worst-case scenarios, calm seaworry how our illness will affect the ones we love, or suddenly find ourselves ill at ease in the world. While a certain amount of fear is healthy and can motivate us to create needed lifestyle changes or go after the medical care we need, a lot of it is not helpful and can actually stress our bodies further.

So, here are 3 simple ways you can get some leverage on the fear and restore yourself to calm:

1. Get a Leg Up. You don’t need to wait for the fear to become overwhelming. Plan to take 3, 5, 10, or 20-minute breaks every couple of hours for the purpose of calming your mind and centering your heart. You can take several deep breaths, meditate, walk outside, or listen to your favorite song. These short intermissions from your life will help you stay connected to yourself and make it less likely for you to spin out in fear. You may wish to set a few alarms in advance to help you remember.

2. Avoid Fear Inducers. If you’re with someone who starts telling you negative stories about how bad someone else’s similar situation turned out, or if they look at you with pitying eyes and speak with an implied “poor you” in their voice, WALK AWAY – FAST. Do not force yourself to hear them out just to be polite. You have enough on your plate without having to make someone else feel better about their negativity. Instead, engage with people who remind you of your strength, your great support system, and the possibility of Grace filling your life.

3. Take Control. Health challenges can have us feeling panicked with a lost sense of control. So what can you still control, even now? It may be the doctors and specialists you go to, or the people you choose to spend time with, what to focus your mind on, or even little things like how you are cleaning your house or cooking your food. If you can put yourself in the driver’s seat in some areas, it can decrease feelings of helplessness.

And here’s a bonus tip that no one really wants to hear, but it’s so important: Lay Off the Sugar, Caffeine and Junk Food! As hard as it is, these things tax the system and will keep you in a cycle of highs and lows. Unfortunately, these are usually the easiest things to grab when you don’t feel liking eating or cooking healthy meals for yourself. But see if you can reach for something a bit healthier next time. It really will help you stay more in charge of yourself and your ability to manage fear.

Thursday, October 20, 2011

Important Note from Jean, Founder of Jeans Cream

Dear Jeans Cream Community,

As you know, October is Breast Cancer Awareness Month. To me, this month is a good time to remember how far I’ve come since my diagnosis and treatment. It is also a time when I reflect on just how essential it is to stay on top of my health. So I want to encourage each and every one of you to also put your health at the head of your to-do list right now – today!

Here are some important appointments to make. Check with your doctor for other tests and medical visits he or she might recommend:

  • Besides getting your mammograms, make sure to schedule your annual physical.
  • There are age-related tests you should have that your doctor will arrange for you, such as a colonoscopy and bone density, cholesterol and EKG.
  • Go to a dermatologist to have a medical professional look at your skin.
  • See your dentist at least annually. Your mouth and gums need to be checked.
  • Visit an ophthalmologist for an annual eye exam to make sure your eyes stay healthy.

If you are asked to get an MRI, Cat Scan or any other evaluation, make the appointment as soon as possible.  You are in charge of staying ahead of the game when it comes to your body.

Thank youJean Soulios for being part of our community! Please continue to stay connected by leaving comments on Facebook or our blog, and by sending us email. We are honored to be a part of your journey of healing and continued good health. May we all continue to thrive for many years to come!

Sincerely, Jean Soulios

Founder and President of Jeans Cream

Thursday, September 8, 2011

Why It’s Not Just Hair

GUEST POST BY MICHELLE YOUNG FROM 4WOMEN.COM

Susan Beausang

Susan Beausang, Founder 4Women.com & the BeauBeau

It’s on the calendar – date, time and place, an appointment you never imagined yourself having to keep, an appointment you never wanted, an appointment you wouldn’t dare miss.  It will be your first chemo treatment.  It is still a couple weeks away, which means you have plenty of time to imagine what it will be.  If you are at all like me, you might find yourself imagining every shade of worst-case scenario.  While we may not have much choice about keeping that appointment on the calendar, we do have choices when it comes to the thoughts we choose and the actions we take.  Ideally, our goal is to not just cope with the reality of cancer, but to turn our anticipation, reluctance, and fear into a determination to imagine and create our own best-case scenarios.

Cancer throws us into the “present tense of crisis”1 in the same way that a hurricane or tornado does.  Just as anticipation of a hurricane stirs us to take actions to protect ourselves from the worst forces of the storm, so can anticipation of cancer treatment and its potential side effects propel us into actions intended to empower us to not just cope, but to thrive.  A positive self-image coupled with a strong sense of self-love help fuel our motivation to seek out that which feeds and nourishes our bodies and our souls.  A cancer diagnosis can catapult our relationship with our bodies and with ourselves into the wind as we suddenly feel like an entirely different person from the person we were pre-diagnosis.  We want desperately to hold onto our self-identity and our sense of “normal,” but the sometimes drastic changes in our physical bodies and appearance that result from cancer treatment can leave us feeling robbed of ourselves and utterly disempowered.

We are not vain for caring.  Appearance changes can significantly impact our perceived quality of life during cancer treatment.  Some women find that though they feel generally well, one glance in the mirror sends a sharp reminder that they are “sick,” posing a major visual obstacle to self-identifying as “well.”  In the words of one respondent to a 4Women.com survey, “Hair loss branded me as a cancer patient and ‘different’ when I desperately wanted to hold on to the normal parts of my life.”

That is why it is not just hair.  Without hair, we feel stripped of our identity and in the context of cancer, it often feels like we are systematically being stripped of ourselves.  We have every right to want to feel good about ourselves because at no time is such love of self more important than when fighting cancer.

The BeauBeau

Woman wearing the BeauBeau

By taking proactive steps to determine our appearance without hair, eyebrows and eyelashes, we can boost our self-confidence and reduce that sense of “present tense crisis.”  By regaining even a small sense of control over those factors we can control (such as outward appearance), our burden lightens and we gain both strength and motivation to take other day-to-day actions aimed at improving our overall quality of life during and after cancer treatment.

For specific tips for turning your hair loss anxiety into self-empowerment and creating your own best-case scenarios, visit 4Women.com’s blog.  The tips appearing there were all provided by women who anonymously responded to 4Women.com’s survey exploring anticipatory coping strategies among women who lose or are likely to lose their hair during chemotherapy treatment.  Their tips remind us that we are not alone on this path.

1Chemobabe blog 6/24/11 post titled “Shifting Time”

4women.com is a wonderful resource for those going through hair loss due to chemotherapy side effects and other conditions. They have a community blog with tips and stories of others experiencing Alopecia, and they sell the popular BeauBeau, a fun, stylish, comfortable head scarf that comes in more than 350 different fabrics (featured in the photos above). Click here to visit their site!

Monday, August 29, 2011

Hope ~ A Quote by Richard Bloch

We recently came upon this quote and wanted to share it. The following passage has been excerpted from a letter on the value of optimism in treating cancer. To read the full letter, click here.Hope

There is no such thing as false hope for a cancer patient. Hope is as unique with each individual as a finger print. For some it is the hope to make a complete recovery. But it might also be the hope to die peacefully; the hope to live until a specific event happens; the hope to live with the disease; the hope to have their doctor with them when needed; the hope to enjoy today. Just as each case of cancer is unique, each person is different. Each individual has the right to be told all their options and then decide for themselves.

~ Richard Bloch, co-founder of H & R Block, Inc. and founder of the R. A. Bloch Cancer Foundation

Richard BlochIn March, 1978, Richard A. Bloch was diagnosed with terminal lung cancer and told that he had three months to live. He chose to fight for his life and was declared cancer-free two years later. For the remaining twenty-six years of his life, Dick and his wife, Annette, devoted themselves to helping the next person with cancer have the best chance of beating it.  Dick passed away in July, 2004 of heart failure.  The R.A. Bloch Cancer Foundation continues the mission under Annette’s leadership.

Monday, August 22, 2011

What I Did To Move Forward

GUEST POST BY JAN BIANCHI

I can honestly say the combination of support groups, therapy and my love of writing is what help me to navigate my journey Jan Bianchiafter diagnosis.  I can’t shortchange the emphasis of close friends and my mother.  Writing was and has been a great filter but then I like to journal and digress.  Not everyone likes to digress and go within to see the murals on the interior walls of their being.  As a poet it is an essential part of my being.  The murals within can be daunting, unfamiliar to someone new who hasn’t been exposed to their inner being on a regular basis. Writing can be cathartic like hot steam needing release. It is the vehicle for the inner voice to have a place on the outside rather than in the warehouse of one’s being.  Journaling my feelings became a poetic quest as I documented my journey.  That documentation led me to create later, My Journey with Breast Cancer, Measures of Hope.

I was forty-one when I was diagnosed.  And I can confess what matters to me now at fifty-one is different than what I felt vanity wise at forty-one.   I would have made different choices regarding my breast reconstruction. (That is another story for another time.)  I was diagnosed with DCIS.  Since it was in various areas in my right breast I was told they could not do a lumpectomy.  I would undergo a mastectomy with immediate breast reconstruction.

The journey of breast cancer is a process of unfamiliar decisions that become educated decisions, startling facts, heart rendering calculations, and unfathomable testing of the human spirit.  The journey is one of declaring that the Self shall shine forth and bare the badge of Honor, Courage and Hope.  Support groups I found very resourceful for having the gift to listen to other’s process and treatments.  Their stories allowed me to become more familiar with my own in the early stages after diagnosis.  If you have one loyal friend you can count on and trust unconditionally, then I would assign that person to being your wingman. Having two sets of ears and eyes during doctor’s visits, treatment protocols (if mandated) will make a huge difference.  For the individual diagnosed, a certain numbing process goes on for a period of time.  There will be things one will miss and perhaps not hear as clearly as the person beside you.  That person has the ability to be the X factor in asking the necessary questions when you may not feel up to it.  That person will also become a valuable resource to anchor the unknown as you go.  If there isn’t someone you feel close enough to ask, reach out to someone in a neighboring support group to help you.  People really are willing to help if invited!

So moving forward through the maze of any forms of cancer is uncharted territory.  Moving forward from life events that catapult one from one extreme to another is life altering.  It is like sifting for gold in the old westerns trying to discover gold verses pyrite.  To distinguish the outcome will vary for each of us. Anywhere someone can find a quiet setting like a garden creates calm around you. It is in that space creativity can be born to uplift the soul that is burdened. Here is where healing can be found whether in silence, discussion with another or journaling with one’s thoughts.

Jan Bianchi was diagnosed with breast cancer ten years ago at the age of forty-one. She underwent a mastectomy to her right breast and had the tramflap for reconstruction*.  A writer of Inspirational Books, Jan has written five books, including one on her breast cancer experience titled, Measures of Hope, My Journey with Breast Cancer.

Jan is an active artist, combining her own photography with her written verses to make inspiring posters. In fact, right now she is running a giveaway of her creations on her blog. She’ll draw three names from the first 200 followers of her new blog and will giveaway 2 prints of the Header Pic that reads: “Encourage the possibilities of your dreams!” along with one copy of her book, Measures of Hope. Visit Jan Bianchi’s website here.

*Jan has had a lot of fallout from undergoing the tramflap and would love to receive any stories regarding similar issues and how they were handled. Please feel welcome to contact her through her blog.
Monday, July 11, 2011

One Step at a Time

If you’re healing from cancer or cancer treatments and are coping with radiation side effects, or side effects from chemotherapy, one step at a timeyou may feel overwhelmed. If you’ve been trying to heal from eczema and haven’t yet been able to clear it up, you may feel resigned or frustrated. If your life seems particularly demanding right now, if it’s pushing you to new limits, know that you don’t have to run full force to the finish line. You just have to do what is before you. You just have to take one step at a time. Take good care of yourself by resting, moving at a pace that feels comfortable, and allowing yourself to handle no more than what you can handle. Right now, you just have to take one step at a time.

Thursday, May 12, 2011

Life After Cancer Treatment Ends

You spend months juggling appointments and dealing with radiation side effects and the side effects from chemotherapy. You After cancer treatment endsmake it through the diagnosis and then the demands of healing. You finally complete your treatment protocol and get a clean bill of health. Now what?

For many people, life doesn’t get “back to normal” – at least not right away. Life has to find a new normal. This may involve lifestyle and diet changes, a difference in outlook, or re-assessing your support network. You may still be coping with the effects of treatment on your body, such as fatigue, memory and concentration changes, pain, or menopause symptoms. You may be addressing body changes or a lowered sex drive. And as one cancer survivor put it so eloquently, “You’re always a little afraid of it coming back.”

So what do you do? How do you handle this beginning to the rest of your life? Here are some great resources to help you navigate life right after treatment ends:

Facing Forward: Life After Cancer Treatment

Cancer Survivors: Managing Your Emotions After Cancer Treatment

Picture Your Life After Cancer

After Cancer: A Guide to Your New Life

Wednesday, April 27, 2011

Cancer Treatment Side Effects: How To Apply Make-Up During Chemo

April Capil created this Makeup Tutorial for Women going through Chemotherapy because, during her journey through April Capilbreast cancer, she “found it discouraging that so many of the women we see on television and in the media (like Celia in WEEDS, Lynette in DESPERATE HOUSEWIVES, and Samantha in SEX AND THE CITY) are depicted as just having buzzed hair or bald heads. If you’ve had cancer and chemo, you know that’s NOT what you look like! Your hair thins, often not fallling completely out. You lose your eyebrows and eyelashes – often you don’t even recognize yourself when you look in the mirror!! It can be very discouraging and you don’t want to go out in public.

“It doesn’t have to be that way. With just a little effort, you can put your face together and feel more comfortable going out in public and not feeling like a freakshow. You just have to rediscover makeup again! Let this video be your inspiration, and check out other YouTube Channels like MichellePhan and MakeupGeek (women who are way, way more talented than me!).”

We LOVE the job she does here – how easy she makes it look to be beautiful!!! Thank you, April!

CLICK HERE FOR HER TUTORIAL.

Thursday, April 14, 2011

How To Ask for Help

If you’re like most of us, just the idea of asking for help can bring up anxiety. But sometimes in life, we’re overwhelmed How To Ask for Helpand simply cannot move forward without the kind assistance of others. This can be especially true if we find ourselves in a healing process, working our way through cancer treatment, chemo and radiation side effects, chronic severe eczema, and so on.

If asking for help is new for you, here are a couple of tips to help you out:

1. Get Clear. What is it that you really need… A ride to the doctor’s office? Someone to cook for you or just sit with you a couple of hours?

2. Be Direct. Forthrightly ask for what you need so that the other person can get a realistic picture of what’s involved.

3. Let Go of Rejection. If someone says, “no,” it has nothing to do with whether you are worthy of being helped. It simply means that they are not available and someone else is better suited to help you. Keep asking until you find the right support.

4. Relax and Enjoy. If someone is helping you, let go and enjoy the assistance. Really use it as a time to receive and focus on your healing.

5. Say, “Thank You.” Sometimes saying a simple, “thank you” is enough. Other times, you might feel drawn to send a note or gift of appreciation. It’ll depend on the situation and friends can help you decide if you’re not sure.

Just think how good you feel when you’re able to do something kind for another person. The people in your life will generally feel the same way, so don’t assume your request is a burden for them. You may actually be the brightest part of their day.