Archive for the ‘survivors’ Category

Monday, August 22, 2011

What I Did To Move Forward

GUEST POST BY JAN BIANCHI

I can honestly say the combination of support groups, therapy and my love of writing is what help me to navigate my journey Jan Bianchiafter diagnosis.  I can’t shortchange the emphasis of close friends and my mother.  Writing was and has been a great filter but then I like to journal and digress.  Not everyone likes to digress and go within to see the murals on the interior walls of their being.  As a poet it is an essential part of my being.  The murals within can be daunting, unfamiliar to someone new who hasn’t been exposed to their inner being on a regular basis. Writing can be cathartic like hot steam needing release. It is the vehicle for the inner voice to have a place on the outside rather than in the warehouse of one’s being.  Journaling my feelings became a poetic quest as I documented my journey.  That documentation led me to create later, My Journey with Breast Cancer, Measures of Hope.

I was forty-one when I was diagnosed.  And I can confess what matters to me now at fifty-one is different than what I felt vanity wise at forty-one.   I would have made different choices regarding my breast reconstruction. (That is another story for another time.)  I was diagnosed with DCIS.  Since it was in various areas in my right breast I was told they could not do a lumpectomy.  I would undergo a mastectomy with immediate breast reconstruction.

The journey of breast cancer is a process of unfamiliar decisions that become educated decisions, startling facts, heart rendering calculations, and unfathomable testing of the human spirit.  The journey is one of declaring that the Self shall shine forth and bare the badge of Honor, Courage and Hope.  Support groups I found very resourceful for having the gift to listen to other’s process and treatments.  Their stories allowed me to become more familiar with my own in the early stages after diagnosis.  If you have one loyal friend you can count on and trust unconditionally, then I would assign that person to being your wingman. Having two sets of ears and eyes during doctor’s visits, treatment protocols (if mandated) will make a huge difference.  For the individual diagnosed, a certain numbing process goes on for a period of time.  There will be things one will miss and perhaps not hear as clearly as the person beside you.  That person has the ability to be the X factor in asking the necessary questions when you may not feel up to it.  That person will also become a valuable resource to anchor the unknown as you go.  If there isn’t someone you feel close enough to ask, reach out to someone in a neighboring support group to help you.  People really are willing to help if invited!

So moving forward through the maze of any forms of cancer is uncharted territory.  Moving forward from life events that catapult one from one extreme to another is life altering.  It is like sifting for gold in the old westerns trying to discover gold verses pyrite.  To distinguish the outcome will vary for each of us. Anywhere someone can find a quiet setting like a garden creates calm around you. It is in that space creativity can be born to uplift the soul that is burdened. Here is where healing can be found whether in silence, discussion with another or journaling with one’s thoughts.

Jan Bianchi was diagnosed with breast cancer ten years ago at the age of forty-one. She underwent a mastectomy to her right breast and had the tramflap for reconstruction*.  A writer of Inspirational Books, Jan has written five books, including one on her breast cancer experience titled, Measures of Hope, My Journey with Breast Cancer.

Jan is an active artist, combining her own photography with her written verses to make inspiring posters. In fact, right now she is running a giveaway of her creations on her blog. She’ll draw three names from the first 200 followers of her new blog and will giveaway 2 prints of the Header Pic that reads: “Encourage the possibilities of your dreams!” along with one copy of her book, Measures of Hope. Visit Jan Bianchi’s website here.

*Jan has had a lot of fallout from undergoing the tramflap and would love to receive any stories regarding similar issues and how they were handled. Please feel welcome to contact her through her blog.
Wednesday, August 17, 2011

Sportscaster Ernie Johnson Jr. on Living with Non-Hodgkin Lymphoma – from Coping with Cancer

We recently read a wonderful interview with Ernie Johnson Jr. in Coping with Cancer Magazine. It is worth republishing here for our community to read. Enjoy:

(by Laura Shipp)

Ernie Johnson Jr. is the host of TNT’s Inside the NBA, alongside former basketball stars Charles Barkley and Kenny Smith. He isErnie Johnson also a play-by-play announcer for golf, basketball, and playoff baseball for both TNT and TBS. Ernie has twice won the Sports Emmy for Outstanding Sports Personality, Studio Host, once in 2002 (when he tied with Bob Costas) and again in 2006.

In 2003, Ernie was diagnosed with non-Hodgkin lymphoma after noticing some swelling on the left side of his face. Here, he shares his story with Coping® magazine.

Coping: What went through your mind when you were told you had cancer?
Ernie: There’s nothing that really prepares you to hear the word “cancer.” When the phone call came, our family was having dinner. My oldest son, Eric, was home from college, and I excused myself from the table to take the call. The call took about 15 minutes, and after I hung up and headed back to the kitchen, Eric said he and our youngest daughter, Carmen, were going to the video store.

“What should we get?” he asked. “Something funny,” I told him. After they left, my wife, Cheryl, asked if that was the doctor on the phone, and I told her the news. Needless to say, that was a difficult conversation to have.

“I wanted to send the message to people that even though you’re diagnosed with cancer you don’t need to go into hiding.”

Coping: What kind of treatment did you have?
Ernie: I remember the first day Cheryl and I went to the Winship Cancer Institute of Emory University. We were sitting in the waiting room thinking, “How did we ever wind up here?” It was surreal. I drank that delightful barium sulfate mixture and had a scan, and then I underwent a bone marrow test, which was as uncomfortable as the doctor had warned. Then came the waiting for results. In many ways, that’s the hardest part because you simply can’t put it out of your mind, waiting for another phone call. As it turns out, the kind of NHL I had was not aggressive, and I didn’t feel bad physically. “Watchful waiting” was the initial course of treatment – visiting the doctor periodically to keep an eye on things with no other treatment required.

Coping: What later prompted the move to begin chemotherapy?
Ernie: The decision to begin treatment didn’t come until nearly three years later. Late in 2005, the swelling in my face had begun to increase to the point that I thought it was noticeable to others. By February 2006, it became evident that there was something going on, so I was given what’s called a maintenance regimen, chemotherapy with a targeted medicine called Rituxan followed by Rituxan on its own for two years. The fact that I made my living on TV complicated things. I became very self-conscious that it was apparent on the air that my face was swollen. That’s when I contacted the Turner Sports PR department and told them what I was dealing with and that I wanted to make folks aware of it. My doctor and I had agreed that we would begin treatment after the NBA season was over in June. I wanted to send the message to people that even though you’re diagnosed with cancer you don’t need to go into hiding.

Coping: How did having cancer affect your work?
Ernie: The folks at Turner Sports were great during this entire episode. They simply told me to focus on my treatment and not worry about work. So while I was in treatment, I missed my usual broadcast duties at the British Open Golf Championship and the PGA Championship, and hosting our College Football Studio shows in September and October. They told me that if I felt up to it, I could return to the air for opening night of the NBA season at the end of October. I’ll never forget that as I sat at my office desk preparing for the first show of the season, I got a call from my doctor telling me that I was done with chemo.

Coping: What about your co-anchors, Charles Barkley and Kenny Smith? Did they treat you any differently after they found out you had cancer?
Ernie: That’s a great question. Before I made my diagnosis public, I spoke with Kenny and Charles in my office one at a time. I told them what I was going through and that I didn’t want that to change the way we went about our jobs. We have a lot of fun on that show. We take shots at one another all the time. I didn’t want them to think, “We can’t joke around with Ernie because he has cancer.” Both Kenny and Charles were great through this whole thing, very encouraging, checking up on me when I was going through chemo.

Coping: What was it like to go through something so personal while in the public eye?
Ernie: It wasn’t easy after making my situation public. I was really self-conscious about the swelling of my face and neck. But at the same time, I didn’t want to just go into hiding because I had cancer. I was going to face this thing head-on. The night that I told viewers what I was facing, I said that everybody has issues they have to deal with, and this was mine. I said that my family and I would face this challenge the same way we face any challenge, that we would trust God, period.

“I didn’t want them to think, ‘We can’t joke around with Ernie because he has cancer.’”

Coping: Many survivors I’ve spoken with say that cancer is the worst and the best thing that’s ever happened to them. Do you feel the same way?
Ernie: I would agree. Getting the word that you have cancer is absolutely devastating at first. The uncertainty is the worst part. Once you have the tests and the results and you know what you’re facing, it’s actually much easier to deal with. My Christian faith has been my lifeline through this whole thing. While this is certainly not something that I would have chosen, it’s part of a much bigger plan for my life. The opportunity to encourage others who are going through similar trials has been awesome.

Coping: What is the status of your cancer now?
Ernie: I’m still in remission. I see my doctor three times a year.

Coping: What advice do you have for someone who has just been diagnosed with cancer?
Ernie: My advice to others who have been recently diagnosed is to realize that you have cancer, but it doesn’t have you. It’s certainly been my experience that your outlook is a huge part of the battle. And as I’ve said, faith is vital.

Coping: What is in the future for you now?
Ernie: In the future for me? Well, I was diagnosed when I was 47. I’m 54 now. When I wake up tomorrow morning, I’ll thank God for another day … and I’ll keep doing that whether I’m here for another five minutes or another 60 years.

Tuesday, August 9, 2011

Dying To Do Letterman – A Must-See!

We have recently come across a film that we just had to tell you about! It’s a unique, touching, and uplifting documentary called Dying To Do LettermanDying To Do Letterman, that follows comedian Steve Mazan on his quest to perform stand-up on The Late Show with David Letterman.

At 35 years old, Steve was handed a diagnosis of incurable liver cancer with the possibility of having just five years left to live. With news that may have devastated many of us, Steve decided it was time to barrel full-steam ahead towards his goal of being on The Late Show. Steve’s motto? Live your dreams or die trying.

Dying To Do Letterman chronicles Steve’s five-year journey as he races his own ticking clock to achieve a nearly impossible goal. It also has a very happy ending – Steve finally receives an invitation to perform on The Late Show. And seven years later, Steve is still going strong and his tumors have remained stable, not growing in size.

The movie won awards at film festivals around the country such as the Cinequest Film Festival and the Cleveland International Film Festival, and has been met with roaring critical and audience acclaim. People are calling it hilarious, heart-breaking and inspirational. The goal of Steve and his friends, Biagio Messina and Joke Fincioen who directed and produced the movie, was to show that it’s not how much time you have left, it’s what you do with it. This is not so much a movie about cancer as it is a film about going for what you want.

The movie includes sit-down interviews and advice sessions with comedy names like Ray Romano, Kevin Nealon, Jim Gaffigan, and Brian Regan (who has 17 Letterman performances under his belt).

Those of you in the NYC area can see the film from August 26-September 1 at the IFC Center, and those in LA can see it from September 2-8 at the Sunset Laemmle 5. For more info. on showtimes and locations, visit http://www.dyingtodoletterman.com

You can also help the movie to be considered for an Academy Award by contributing to their Kickstarter campaign! Click here.

About Dying to do Letterman from Joke and Biagio on Vimeo.

Monday, August 8, 2011

It’s Never too Late to Chase your Dreams by Steve Mazan

When comedian Steve Mazan learned that he had inoperable liver cancer with the possibility of five years left to live, he decided to go for his biggest dream: to be on The Late Show with David Letterman. His determination and his journey were documented in the fun, exciting film Dying To Do Letterman, which we’ll be posting a review of shortly.

Before we post that, we thought you might really enjoy seeing Steve in this TED talk, where he delivers a brilliant mix of comedy and inspiration, encouraging us all to chase our dreams.

Thursday, May 12, 2011

Life After Cancer Treatment Ends

You spend months juggling appointments and dealing with radiation side effects and the side effects from chemotherapy. You After cancer treatment endsmake it through the diagnosis and then the demands of healing. You finally complete your treatment protocol and get a clean bill of health. Now what?

For many people, life doesn’t get “back to normal” – at least not right away. Life has to find a new normal. This may involve lifestyle and diet changes, a difference in outlook, or re-assessing your support network. You may still be coping with the effects of treatment on your body, such as fatigue, memory and concentration changes, pain, or menopause symptoms. You may be addressing body changes or a lowered sex drive. And as one cancer survivor put it so eloquently, “You’re always a little afraid of it coming back.”

So what do you do? How do you handle this beginning to the rest of your life? Here are some great resources to help you navigate life right after treatment ends:

Facing Forward: Life After Cancer Treatment

Cancer Survivors: Managing Your Emotions After Cancer Treatment

Picture Your Life After Cancer

After Cancer: A Guide to Your New Life

Wednesday, April 27, 2011

Cancer Treatment Side Effects: How To Apply Make-Up During Chemo

April Capil created this Makeup Tutorial for Women going through Chemotherapy because, during her journey through April Capilbreast cancer, she “found it discouraging that so many of the women we see on television and in the media (like Celia in WEEDS, Lynette in DESPERATE HOUSEWIVES, and Samantha in SEX AND THE CITY) are depicted as just having buzzed hair or bald heads. If you’ve had cancer and chemo, you know that’s NOT what you look like! Your hair thins, often not fallling completely out. You lose your eyebrows and eyelashes – often you don’t even recognize yourself when you look in the mirror!! It can be very discouraging and you don’t want to go out in public.

“It doesn’t have to be that way. With just a little effort, you can put your face together and feel more comfortable going out in public and not feeling like a freakshow. You just have to rediscover makeup again! Let this video be your inspiration, and check out other YouTube Channels like MichellePhan and MakeupGeek (women who are way, way more talented than me!).”

We LOVE the job she does here – how easy she makes it look to be beautiful!!! Thank you, April!

CLICK HERE FOR HER TUTORIAL.

Tuesday, March 29, 2011

Enter Our FREE Book Giveaway: “Cancer Has Its Privileges” by Christine Clifford

Cancer survivor and founder of The Cancer Club, Christine Clifford has gathered a collection of battlefield stories cancer has its privilegesand anecdotes from her fellow survivors that go from the outright hilarious to the downright moving, and combined them with her own personal story of triumphant survival. This week you have a chance to win her acclaimed book, Cancer Has Its Privileges: Stories of Hope and Laughter to fill your life with inspiration, love and support.

What people are saying about Cancer Has Its Privileges:

A book filled with what I call survival behavior. A meaningful life is built on love and laughter and this book shares both… I recommend it to all those who have the desire to be survivors.
—Bernie Siegel, M.D., Author of Love, Medicine and Miracles

You don’t have to have had cancer to be a survivor. Christine’s inspirational and pathologically positive attitude should be shared by everyone who has faced adversity. God definitely has a plan for this woman.
—Larry Gatlin, Grammy Award winning singer/songwriter

If you’d like to try for a chance to win Christine’s book for yourself or a friend, here’s what you need to do: Leave a comment by 6pm on Tuesday, April 5, 2011 and tell us why you’d love to have this book! If you have a story to share, tell us about that too!

Some technical details…
1. Only one entry will count.
2. Giveaway is open to legal residents of the continental United States who are at least 18 years of age.
3. The winner will be selected at random and notified via email.

Thursday, February 10, 2011

Arnold Palmer on Surviving Cancer

Golf legend Arnold Palmer survived his own bout with prostate cancer and has seen both his wife and daughter fight their own battles with cancer. He is now dedicated to helping others with the disease to get the support and care they need. This video is great — full of sound advice and a winning spirit.

arnold palmer

Click here for the video!

Sunday, November 7, 2010

Kimberly Fowler Beat Brain Cancer

Kimberly Fowler has forged her own path, completely recovering from severe accidents and beating inoperable brain cancer at age 24. She believes in herself and in her own power to a degree that is astounding. When she was diagnosed with cancer, she had few treatment options. While in the hospital, she got really clear on what was the right way for her to proceed and it led to a major life transition and many years of helping others. She continues to inspire so many.

Click here for the short video of Kimberly.

Kimberly Fowler

Thursday, October 28, 2010

The Return of Myles McLellen

Warning: you may need a box of tissues on hand as you watch this. No sad endings here. Just a glimpse into the very touching, very real process many children go through even after they’ve survived cancer and its treatment. The social aspects of their lives totally change and it can be extremely tough. This young boy, Myles, reminds us how much everyone really needs to be loved and accepted – especially when their life path involves a difficulty like cancer.